Our gorgeous 15 year old boy Thomas is slowly dying. He is suffering from the most common and most severe type of Muscular Dystrophy – ‘Duchenne’.
Duchenne Muscular Dystrophy is a muscle wasting disease, where muscle tissue is progressively replaced by fatty or connective tissue. It normally only affects boys.
Doctors expect sufferers like him to be using a wheelchair between the ages of 8 and 11, and it becomes life threatening at 18. Many sufferers don’t reach their late 20’s, as ‘DMD’ as its known, affects every muscle in the body, including the heart.
The worst thing is, there is no cure. The benefit of existing treatments are extended mobility (we’ve been told up to 3 years) but any treatments available have severe side-effects, such as brittle bones, weight gain and stunted growth.
This is why we need to raise money – there is still time for scientists to find a cure for DMD and research is on-going, but it could take years for them to find a cure and then it needs to pass the tests to release it to the public, so the sooner we raise vital funds, the better.
Thank you for your support – it means the world to us x
He’ll be out of action for the next few days as it makes him quite poorly – but he just takes it all in his stride as always. Superheroes don’t always wear capes 
It’s sometimes quite difficult to get blood from his veins, but today they didn’t need as much and were able to pin prick his finger which he was pleased about 
He’s been very brave as always 
