"I will be adding regular updates to my notes about my training, preparation and fundraising for the Cheshire Triathlon in May!"
WE SUPPORT:
Fighting to help our little boy have a bright future
Our lovely little boy Thomas was diagnosed with Duchenne Muscular Dystrophy in January 2008.
'It is a devastating muscle wasting disease that leads to paralysis and early death. Imagine being told that your beautiful normal little boy will be in a wheelchair by the time he is ten. Imagine being told that by the time he reaches his late teens or early twenties he will probably be dead.'
(taken from Action Duchenne Leaflet).
At present we are keeping everything crossed for the future, with all the research into finding a cure that's going on in different parts of the world.
We are also spending our spare time raising money for Action Duchenne doing various activities (which will be documented here) and also just as importantly, raising awareness of this terrible disease.
Thank you for your support!
OUR LATEST NEWS
Raising Money for Action Duchenne!
Once again, Karen and Neil are taking part in the Cheshire Triathlon, on Sunday May 22nd 2011. They both competed in the Cheshire Triathlon in 2008... [read more]
Cheshire East’s Former Mayor Hands Over Cash To Charity
CHESHIRE East Council’s first mayor spent much of her term of office raising awareness of a little known form of muscular dystrophy.
Cllr Margaret... [read more]
Collection for Muscular Dystrophy
On the 25th and 26th of September, we joined many other people across the country at local Tesco stores to raise money for the Muscular Dystrophy... [read more]
Carnival Day Success
The Bank Holiday weekend saw another successful money raising venture for the Mayor of Cheshire East's Charity Fund. The Action Duchenne 'Team'... [read more]
We are always on the lookout for more tombola stall prizes to raise funds! We haven't got another one planned yet but no doubt there will be one coming up soon. If you have any unwanted gifts or anything you think might be good enough to use as a prize, please bear us in mind.
CAN YOU HELP WITH RAFFLE PRIZES?
We are always looking for decent prizes for Raffles/Draws which we can hold to raise money.
Can anyone help us by donating a prize or recommend anyone who might be able to help?
MUSCULAR DYSTROPHY ECARDS
Got any special occasions coming up? You might consider creating your own unique eCard to send to your friends, family and colleagues from as little as £1. All proceeds go towards funding vital research and supporting families with muscle disease.
