|
|
|
 |
Our lovely little boy Thomas was diagnosed with Duchenne Muscular Dystrophy in January 2008.
'It is a devastating muscle wasting disease that leads to paralysis and early death. Imagine being told that your beautiful normal little boy will be in a wheelchair by the time he is ten. Imagine being told that by the time he reaches his late teens or early twenties he will probably be dead.'
(taken from Action Duchenne Leaflet).
At present we are keeping everything crossed for the future, with all the research into finding a cure that's going on in different parts of the world.
We are also spending our spare time raising money for Action Duchenne doing various activities (which will be documented here) and also just as importantly, raising awareness of this terrible disease.
|
On 25th and 26th September the Muscular Dystrophy Campaign will be collecting outside Tesco stores across the UK. Tesco have chosen the Muscular Dystrophy Campaign as their charity of the year for 2009.
They are looking for volunteers to help with the collections - even if it's just for a couple of hours!!
To learn more or to sign up online, please click the link below:
Strength in Numbers Appeal
|
The Mayor of Cheshire East and her Consort are holding a Charity Ball in aid of Action Duchenne and also Hearing Dogs for Deaf People, her two chosen charities for the year.
It's going to be held at Nantwich Civic Hall, Beam Street, Nantwich on Friday 9th October 2009 between 7pm and 12am. There will be a champagne reception, three course dinner and also dancing to Junior Parker and the House Rockers.
The tickets are £25 each and they are going fast! If there is anyone who is interested, please let me know as soon as possible!! Thank you! |
The Bank Holiday weekend saw another successful money raising venture for the Mayor of Cheshire East's Charity Fund... [more] |
 |
On Wednesday 26th August 2009, St. Mary's Church Ladies Group arranged an evening to raise money for Action Duchenne... [more] |
 |
Congratulations to Kevin Henson (Thomas' Grandad!) for organising a successful Charity Fishing Match... [more] |
 |
We are always on the lookout for more tombola stall prizes to raise funds! We haven't got another one planned yet but no doubt there will be one coming up soon. If you have any unwanted gifts or anything you think might be good enough to use as a prize, please bear us in mind.
|
We are looking in earnest for decent prizes for a Raffle which the Mayor of Cheshire East will be holding at a Ball next month. Some prizes already collected are a tour of Manchester United Football Ground, Giovannis Restaurant voucher, a signed Crewe Alexandra ball and a £10 butchers voucher.
Can anyone help us by donating a prize or recommend anyone who might be able to help?
UPDATE! We have now secured two family passes for a week at Total Fitness gym in Crewe.
|
Have you bought your Christmas cards yet? If not then you might consider purchasing them from the Muscular Dystrophy Campaign. All profits from the sales of the cards and gifts go to fund research and support families with muscle disease.
Please visit this link:
Muscular Dystrophy Christmas Cards
to see the designs!
To purchase any cards you can download the order form on the site or call their orderline.
|
We are always on the look out for fun and original fundraising ideas! If anyone has any please let us know! |
|
|
|
